Update on Amethyst and Sai Sai – Our special girls with oromandibular hypogenesis syndrome

Operation Restore Hope with the assistance of The Mill House Foundation and Mao & Ophee De Vera (members of our partner The Philippine Australian Medical Association – PAMA) have been sponsoring Amethyst and Sai Sai now for five years.  Both these little girls have oromandibular hypogenesis syndrome, meaning that they were born not only with incomplete arms and legs but also with incomplete sealed jaws.  The condition is very rare, so it is unusual to have two little girls not too far apart in age in one program.  Having one another and meeting and sharing experiences for them and their families at Operation Restore Hope screenings and clinics with our partner the Mijares Gurango Craniofacial Foundation has given them a small but mighty support group. 

The girls will continue to require support as they grow as they need to have their prosthetic legs updated regularly and will have to continue to conquer special medical needs around breathing, feeding and the development of their mandibular area as well as their gross and fine motor skills.  What is most gratifying is that both girls are in school, socialising and age appropriate or better in literacy and numeracy.

Sai Sai in 2015 Aged 5 Sai Sai in 2019 Aged 9

Sai Sai is now nine years old.  Not only is she walking and moving confidently on her prosthetic legs but she is breathing well without a tracheostomy and feeding normally.  In fact, her favourite food is Jollibee burger steak.  She is at the top of her class and winning academic medals as shown in her picture above in her school uniform. 

Amethyst in 2015 Aged 3 Amethyst in 2019 Aged 7

Amethyst is now seven years old.  Amethyst had difficulty and discomfort adapting to her prosthetic legs but is able to ambulate now on her limbs.  She still requires a tracheostomy after having had pneumonia a few years ago.  She is eating normally, socialising wonderfully and enjoying school.  She loves to draw and is the artist of the charity’s caterpillar note cards.

Both girls are absolute inspirations to all the volunteers at Operation Restore Hope who have had the privilege to get to know them over time.  Most people would find any one of the challenges they face to be a burden, but they and their families face these challenges with immense courage, never wasting a moment on self-pity.  They are both true heroes and we look forward to sharing in their victories for years to come.

Dr Hodgkinson Guest Speaker at Philippine-Australian Medical Association’s 27th Anniversary

Dr Hodgkinson was the invited guest speaker at the recent 27th anniversary function of the Philippine-Australian Medical Association (PAMA).  The night which was resplendent with a colourful 1920’s theme was a celebration of 27 years of achievements by PAMA and their medical missions to the Philippines as well as a fundraiser for their major mission next February to the mountains of Luzon.


There were presentations by PAMA President Dr Roger Fabian, the new Philippine Consul General, the Honourable Ezzedin Tago and of course Dr Hodgkinson.  Dr Hodgkinson spoke not only about Operation Restore Hope (ORH) and all it’s achievements over 25 years in the Philippines but also of the critical role played by the charity’s partners and collaborators like PAMA.  These collaborations make it possible not only for ORH to work throughout the year but for all of us to widen our reach and increase our capacity to help the less fortunate.  For example, PAMA identified two children last year during their Nueva Ecija mission who could not be operated on in a mission environment: one with a lumbosacral meningocele and the other with a nasofrontal meningocele.  With combined resources from Operation Restore Hope and PAMA, we were able to get these patients to Manila to be operated on by ORH partner Dr Taps Gurango of the Mijares Gurango Craniofacial Foundation.  Both patients are now well and back home in Nueva Ecija.


Other collaborations have been the sharing of expertise and networking.  Through PAMA, ORH is fortunate to have Ugnayan Ng Pahinungod, the charity outreach arm of the University of the Philippines (UP) and Philippine General Hospital (PGH) led by the highly committed and talented plastic surgeon Dr Eric Talens as their on the ground partner for missions.  This networking and sharing of contacts has also included medical personnel, biomedical engineers and more.


ORH wants to thank PAMA for their years of friendship and support and hope that we can continue to work together to help each other fulfill our mutual goal to use our talents and efforts to help the less fortunate people of the Philippines who need medical intervention and who without charitable assistance would go untreated.


Congratulations PAMA on 27 Years!  We look forward to working together for the next 27.